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Terrorist Attacks Highlight Need For Electronic Medical Records

By LAURA LANDRO
Staff Reporter of THE WALL STREET JOURNAL

ELECTRONIC MEDICAL RECORDS that could instantly supply a person’s blood type, allergies and past treatments could help save lives in an emergency, many experts agree. The technology exists to share such personal data on the Internet, but efforts to implement a nationwide system have been stymied by high costs, a highly fragmented health-care system and privacy concerns.

Last week’s terrorist attacks highlighted the need to get U.S. hospitals wired, say emergency physicians and medical-information specialists. “It is amazing that none of the plans for post-Sept. 11 life demand that electronic health records be a priority,” says C. Peter Waegemann, executive director of the private Medical Records Institute, which promotes use of electronic records.

But hospitals would have to invest in new systems to collect and use the information, and many are operating in the red. “The health-care system is almost as strapped as the airline industry,” Mr. Waegemann says. “It will take funding, and someone with the political will to say we need this.”

Mr. Waegemann contends that electronic health records could improve peoples’ chances of surviving in emergencies. The most pressing need is to inform doctors of a patient’s medical conditions or drug allergies for immediate trauma treatment. But electronic access to dental records or other personal medical data also could help identify victims who don’t survive. “In a mass casualty situation, we need to be able to rapidly access medical information,” adds John Halamka, an emergency medicine physician and chief information technology officer at Boston’s Caregroup hospital system. “We don’t have the time or luxury of taking a medical history.”

THE MEDICAL RECORDS Institute estimates that only 5% to 10% of health-care providers now use paperless record-keeping systems. Hospitals generally don’t have information systems that allow them to share patient data within their own internal departments, let alone with other hospital systems.

Even if individual physicians do keep electronic patient records, they might not include data from all specialists treating the same patient, such as dentists. And some worry that an emergency breakdown in communications systems could render electronic records useless. For that reason, California, for example, requires health-care providers relying on electronic records to have an offsite backup system, or keep paper copies.

Recently, various government advisory groups have been working on ways to create a national health-data network in which a patient would consent to have his or her medical records put online in a secure, password-protected site. In addition to aiding individual treatment, such a network could also identify clusters of health problems and provide an early-warning system for outbreaks of serious illness.

It also could help deliver a wide range of medical data to physicians and promote so-called telemedicine systems, which allow doctors in one place to help treat patients far away. But such efforts are at an early stage, and proponents are just starting to deal with issues such as technical standards.

THE ATLANTA-BASED Centers for Disease Control and Prevention is developing uniform specifications for data entered in emergency-department patient records, covering over 150 data elements. The program envisions linking emergency rooms and public-health departments via secure servers. Among other uses, it could help quickly identify health threats. Daniel Pollock, acute-care team leader at the CDC’s injury prevention center, says pilot projects in Oregon and North Carolina have shown how important such systems are in emergencies such as floods and hurricanes, which also create long-term public-health problems.

In Indianapolis, five hospital systems have begun sharing some data on a network that can report patterns to health officials. Clem McDonald, director of the Indiana University-affiliated program, says the network could provide a warning system for things like biochemical attacks.

Patients have to get over their privacy fears, says Todd Taylor, an emergency-care physician in Arizona. “People get so concerned about having their medical records on a computer, but don’t give a second thought to handing their credit card” to a restaurant, Dr. Taylor says.

The Department of Health and Human Services in July issued the first in a series of privacy guidelines for medical records and other personal-health information. Hospitals and health plans are required to comply by April 2003.

Dr. Taylor says new privacy rules have good intentions but are sparking fear among hospitals “because penalties for violating the law are so severe.” But Joy Pritts, senior counsel at the Health Privacy Project at the Institute for Healthcare Research and Policy at Georgetown University, says she believes the rules, when properly understood, will encourage use of electronic medical records, while providing the security needed to prevent personal data from being improperly used.

She adds that emergencies are exceptions to such concerns. “Whether it be a situation of mass casualties or an individual in a car accident,” she says, “the regulations recognize that there are times when doctors need access to health information immediately to treat a patient.”

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